ICW participation poster

Kate Charlesworth and ICW have produced a poster on participation. The poster features a participation tree which helps access where organisations you know of are in relation to the involvement of HIV positive women and their organisations, including ICW. For more information and to see the poster online click on 'read more'.


Near the base of the trunk, decisions are made solely by others. Women and girls living with HIV have no role in decision making. Further up the trunk, decisions are made by others with advice from HIV postive women. At the top of the tree, where you will find the fruit, there is more sense of the real working partnership between HIV positive women and our organisations, and others.

ICW believes that when HIV positive people are involved in all levels of decision-making of an organisation, it is better able to respond to the concerns of people living with HIV/AIDS. For example, HIV positive women and girls are best placed to understand the barriers we face in accessing care and treatment and support. We are therefore the best people to consult on the development, design and delivery of better ways of making treatment and care available to HIV positive women and girls around the world. Working together with us in creative, interactive and participatory ways, and with others who work directly with community members and other relevant groups, will enable us to create 'services to fit people' rather than 'people to fit services'. Without this, we believe the barriers which prevent women and girls accessing treatment and care will not be adequately addressed, and HIV positive women and girls will continue to get sick and die.

It is now over ten years since the GIPA Principle, of Global Involvement of HIV positive people was adopted at the Paris AIDS Conference. Whilst widely accepted in theory, however, in practice our experience has been that the views and voices of HIV positive people - especially HIV positive women and younger people - still tend to be overlooked or ignored. To mark the 10th anniversary of GIPA, therefore, ICW commissioned political cartoonist Kate Charlesworth to produce the "Tree of Participation" for us, to try to convey what we mean by "meaningful participation" to others. This tree has been adapted by ICW from Roger Hart's ladder of participation of children, 1997, UNICEF. Please feel free to use this tree, distribute it amongst your colleagues, display it in your offices and use it in your talks. We would appreciate it also if you would credit ICW for its production. If you would like to read more about ICW's view on participation, please also look at our Vision Paper No. 5 and our guidelines for ethical research, both also available on this website. View all other ICW publications or
access the poster directly. Please not the poster is a large download - 1.2Mb JPG file.